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This is the 30 second updated Public Service Announcement international version of the ME/CFS Worldwide Patient Alliance, a project supported by PANDORA. It was created to raise awareness for myalgic encephalomyelitis (ME) also known as chronic fatigue syndrome (CFS) in the United States. Share the video. Speak up for ME/CFS and become an agent for [...]
Filed under: Health | Tagged: CFS, ME/CFS | Leave a Comment »
I have a hard time explaining, even to my closest friends and family, how this illness impacts me day in and day out. Because I choose to push and “look” good on occasion, doesn’t ever mean I feel good. I do have days I feel better than others, but I always feel sick. Yesterday, I [...]
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When I wrote my post on my new painting “Enchanted Roses”, I realized that I had never written a post about this new painting “Enchanted Butterfly”. It’s 11″x14″ and it’s painted on Hot Press. This is how I was able to get this wonderful marbled look in the background. I am learning to love hot [...]
Filed under: Art, Health | Tagged: CFS, Enchanted, ME/CFS, New Painting, Painting | Leave a Comment »
I’m reposting a blog post from 3 years ago. I am, just today, putting prints of this cross painting in my Etsy Shop (11×14 or 8×10) and I was recalling the amazing experience of painting it. I was experiencing such pain and fatigue. I painted with tears streaming down my cheeks, from the pain and [...]
Filed under: Art, Health, Spiritual | Tagged: Art, CFS, Faith, Painting | Leave a Comment »
For 8.5 years, though my illness developed and progressed, one positive thing was that it seemed as if I rarely caught colds, flus or other virus’. Sometimes, everyone in the family would catch a bad cold and I would come down with a bit of it, but it was gone within a day or two. [...]
Filed under: Health | Tagged: CFS, Health, M.E./CFS | 1 Comment »
Well, it’s been a week since my appointment with Dr. ME. Wow… can’t believe it! Last monday I had a full afternoon at the doctor’s office, including some IV fluids, and Tuesday afternoon I had a VO2 max exercise test and consult with a physiologist. I help up fairly well… Wed morning I was moving [...]
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“Sometimes we pray and pray, and when the miracle comes we are so startled we are almost scared! In a flurry of miracles the past 2 days, I am going to be seeing one of the top M.E./CFS specialists in the world. I’m happy, I’m scared, I’m in awe of God, I feel unworthy, I [...]
Filed under: Health, Life | Tagged: CFS, M.E/CFS, Packers | 1 Comment »
I haven’t posted much lately about my illness. I’m tired of talking about it. I’m tired of thinking about it. So far, a cure has not been discovered, so, M.E/CFS is just a part of my life. I’ve grieved and now it’s time to live! So I’m trying. I’m trying to learn to live in [...]
Filed under: Family, Health | Tagged: CFS, M.E./CFS | 3 Comments »
I almost always have some symptom(s) of my M.E./CFS or Dysautonomia in a flare. Some are harder to endure than others. I often share with my friends that “my stomach is shutting down” but that is a simple statement of something quite complex. Since a “stomach flare” started yesterday, I thought it might be a [...]
Filed under: Health | Tagged: CFS, Dysautonomia, Gastroparesis, Health, M.E./CFS | Leave a Comment »
During my first “leadership” position, at the age of 19, I learned a lesson that has carried me through many leadership crisis points in my life. I was a young college student, serving as a camp counselor at Redwood Camp, Mount Hermon. The common phrase among the staff that summer was “Go with the flow”. [...]
Filed under: Health, Life | Tagged: CFS, Changes, M.E./CFS | 2 Comments »
